Crowdsourcing Your Mental Health at #SXSW

Crowdsource Your Mental Health at SXSW

We were extremely proud to have one of our team members selected to lead a panel discussion at this year’s annual SXSW Interactive festival! Schipulite Sarah M. Worthy and former Schipulite Data Analyst Dr. Dharol Stevens, PhD. led a Core Conversation on the topic of “How to Crowdsource Your Mental Health for Free.”

The audience was made up of an array of medical professionals, those looking for better ways to find health information online, and those curious about the topic as it relates to the growing trend of Health 2.0. The panel was a great discussion with lots of feedback and participation. Below are my highlights:

Why Crowdsourcing for Mental Health?

Crowdsourcing is where many people are doing a little bit of the work instead of one person doing all the work.

Over 50% of people in the US can’t afford afford mental health treatment. Mental health issues are complicated and much of  the treatment is trial and error. Unlike other medical conditions, mental health symptoms do not necessarily have only one answer that a doctor (even a very experienced doctor) can diagnose with a single test or symptom.

For Mental Health issues specifically, crowdsourcing can help piece together the puzzle of what is really going on for symptoms that are difficult to diagnose. The idea is that crowdsourcing is a tool you can use to be more informed and aware when you visit a doctor.

The Power of Crowdsourcing

SXSW Part 2 058Crowdsourcing’s power is in its specifics. Reading other people’s very specific accounts can hopefully ring true to your unique situation as well.

The benefits of these personal experiences include:

  • Reading other people’s stories lets you know you’re not alone
  • Seeing stories of those going through treatment may set expectations for what treatment entails
  • Stories of people who have overcome health issues gives hope that the symptoms will eventually end
  • Reading other people’s accounts can also help you define symptoms you didn’t otherwise know how to articulate, or things you didn’t know were a symptom you should be paying attention to
  • These accounts give access to peer support which can be incredibly powerful for those going through any kind of medical treatment
  • When you visit your doctor, you can ask more informed questions to get to treatment faster

Tools for Anonymous Online Searching

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Many people hesitate to do searches around mental health online because they are worried about the privacy issues involved. If your family or peers cause these concerns, here are some resources to try for anonymous searching online:

  1. Incognito mode in the Chrome browser when browsing the web
  2. Tor – For IP address anonymity online
  3. Duck Duck Go – Anonymous Search Engine with Privacy at its core

Validating Medical Information Online – The Downside to Crowdsourcing

The danger of crowdsourcing is that 50% of health sites have incorrect information. You can combat this by arming yourself with tools to evaluate information online and look for trusted sources.

Tips for Validating Online Medical Information

  1. Verify that it is written by an expert
  2. Make sure it is current & cites valid sources
  3. Look for certifications and disclaimers

Valid Sources for Medical Information Online

  1. Look for .gov or .edu sites
  2. Anything linked from the resource pubmed will be credible
  3. If you find studies cross linked you can look for them on scholar.google.com – Sometimes it will appear as though you have to pay for detailed study information, but any government journal is required to release its studies for free after 2 years
  4. Health on the Net is a great resource as well – this organization’s goal is to publish credible medical information

“It’s never been easier to cross reference information online” – Dr. Dharol Stevens

mental health apps to try

Mental Health Apps to Help Focus

  • Mood Tracker tracks your mood over time and shows patterns like how your mood is related to stress, amount of sleep, etc.
  • Focus Booster uses the Pomodoro technique to break down work into 25 minute chunks of uninterrupted time
  • Lifetopix is an app of organization tools help you stay organized and focused
  • Self Control blacklists programs or websites you block for a certain period of time so you can focus

Tips for Finding a Doctor

“If you take one thing away from this, it is that the Internet is not your doctor. You still need a doctor.” – Sarah M. Worthy

The internet will never replace a medical professional. Hopefully it will arm you with the tools to start the conversation.

Tips for Finding a Doctor

  • Unfortunately the best way to find a doctor is still word of mouth
  • Like treatment, know that finding a doctor you like will be effort – it may take some trial and error
  • If you don’t like the person you are working with it’s ok to look for another doctor (your gut feeling is probably right)

Apps to  for Locating a Doctor

(Note that this list was crowdsourced from the audience)

Keep the Conversation Going! More on This Topic:

TED 2013 Starts Today! Some of our Favorite TED Videos

We at Schipul love sharing knowledge and inspiration – especially the fantastic free videos that come out of the annual TED Conference! In honor of the 2013 TED Conference (which starts TODAY), we’ve put together a few of our favorite TED videos to share.

A few ways to follow along with the TED Conference:

What is your favorite TED video? Let us know in the comments!

Some of our Favorite TED Videos!

Simon Sinek – How Great Leaders Inspire Action

Quote: “People don’t buy what you do; people buy why you do it”

Talk Details on TED.com

Loved by Sarah Worthy

Benjamin Zander – The Transformative Power of Classical Music

Quote: “The conductor of an orchestra doesn’t make a sound. My picture appears on the front of the CD — but the conductor doesn’t make a sound. He depends, for his power, on his ability to make other people powerful. And that changed everything for me.”

Talk Details on TED.com

Loved by Caitlin Kaluza

Brené Brown – The Power of Vulnerability

Quote: “When we work from a place, I believe, that says, ‘I’m enough,’ then we stop screaming and start listening, we’re kinder and gentler to the people around us, and we’re kinder and gentler to ourselves.”

Talk Details on TED.com

Loved by Benjamin Floyd

Ken Robinson – Schools Kill Creativity

Quote:  “I believe our only hope for the future is to adopt a new conception of human ecology, one in which we start to reconstitute our conception of the richness of human capacity.”

Talk Details on TED.com

Loved by Eloy Zuniga Jr.

Amy Cuddy – Your Body Language Shapes Who You Are

Quote: “Tiny tweaks can lead to big changes.”

Talk Details on TED.com

Loved by Erica Bogdan

What Did We Leave Out?

Have a favorite TED video we didn’t include here? Let us know in the comments!

Register for 2013 Tendenci Training Events! In-Person Tendenci 5 Workshops

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New to Tendenci? Looking for a refresher? Have a new board member, volunteer, or staff member you’d like to train up? Register now for one of our free in person classes!

2013 is in full swing and we’re getting things started right by ramping up our Tendenci Training Classes! We’ve added SIX new Tendenci 5 Training Events to the calendar!

These events will be hands on training in our offices in Houston, Texas covering the Tendenci 5 software platform with our team members.

These classes are FREE but space is limited, so please Register to reserve your spot using the links below or the Tendenci events calendar!

See all upcoming Tendenci Events on our events calendar at Tendenci.com/events

 Upcoming In-Person Tendenci Training Events!

Tendenci January 23 Training Event

January 23, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

Tendenci January 30 Training Event

January 30, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul Offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

Tendenci February 6 Training Event 2

February 6, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul Offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

Tendenci February 20 Training Event

February 20, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul Offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

Tendenci February 27 Training Event

February 27, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul Offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

Tendenci March 27 Training Event

March 27, 2013

Tendenci Website Management Workshop

2:30 – 4:30 PM

In person in the Schipul Offices:

11757 Katy Freeway Suite 930, Houston, TX

See Details & Register Now!

 

See all upcoming Tendenci Events on our Tendenci Events Calendar at Tendenci.com/events

 

Questions? Let us know!

If you have any questions about this workshop, if it applies to your website software, or suggestions for future Tendenci Live Workshop events, then contact us and we’ll help you out!

 

Some Clients Experienced Mail Server Outage Yesterday – Issue is Resolved

Between the hours of noon and five yesterday afternoon, one of our mail servers went down and was not relaying email from some Tendenci 4.1 and Tendenci 5.0 websites. We have updated the effected sites to point to a new server and all notices should now be sending properly.

The mail server effects email notices sent through the website. For Tendenci 4 Clients, the mail server also effects newsletter sends. If you queued a T4 newsletter to be sent yesterday, it remained in the queue and was sent yesterday evening.

We apologize for the inconvenience. Below are instructions on how to review the email notices generated from your website:

How Do I Know if My Site was Effected?

You can review the notices created from your Tendenci website following these steps.

If you are a Tendenci 5.0 Client:

Be sure you are logged in as a superuser and hover over Quick Links to choose “Admin Backend”

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Scroll down to the Notifications box and click “Notice emails”

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Or you can navigate to this page directly using the URL:  yourURL.com/admin/notifications/noticeemail/

This will display a list of all of the email notices your site should have sent. Look for any notices dated yesterday (January 2, 2012) and click the name of the notice to read the contents.

Screen Shot 2013-01-03 at 11.48.16 AM

If you are a Tendenci 4.1 Client:

In Tendenci 4 there are a few reports that log activity that should have resulted in an email notification. Review the following links to make sure you didn’t miss anything yesterday:

Contacts Report Displays Contact Form Submissions by Day

The most common email notification you will receive is when someone submits your Contact form. To review your site’s Contacts Report – from the Dashboard, click “Reports” under the Tendenci tabs. It will be listed as the first report.

Or navigate directly to yoursiteURL.com/en/users/reports/contacts.asp 

Look for contact forms that came in January 2. Each block represents a contact form, click on the block to view the user’s information and contact form notes.

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Other Tendenci 4 Email Notification Reports:

  • Pending Actions – Displays all pending submissions that require approval – yoursiteURL.com/en/actions/search.asp
  • Event Registrations – Displays list of Event Registrations – yoursiteURL.com/en/calendarevents/registrations/search.asp
  • Membership Notices – Displays any Membership email notifications – yoursiteURL.com/en/memberships/notices/logs/search.asp

Thank you for being a client!

We apologize for the inconvenience, and are happy to help answer any questions you have.

Contact us at support@tendenci.com or (281) 497-6567 ext 411