Boss Blog of the Month: Neurofibromatosis Cafe

reggie-bibbsBoss [baws, bos]
-adjective
1. exemplifies a unique quality; awesome; incredible
2.  An expression from the mid 1950s, which fell from favor by the early 1960s….until now.
Hey dude, do you know Reggie Bibbs? I heard his blog is so boss.

As I stand sit here, amongst a sea of people, adorning my wizards’ cloak and wand, I feel the need to rise up…for today marks the start of something glorious! No, they have not finally captured the French Big Foot named Clouseau and put him on display in Canada. Come on dude. This friends, is the beginning of a new era…a place where bloggers can be exalted for a job well done. A place where I can sit here every month and say…This Blog is So Boss.

Like all historic revolutions, I must start out with a bang followed by a little pow. Hell, let’s throw in a 540 tornado kick, landing in a roundout back flip – blindfolded. It’s true, some blogs just have that affect on people, and ninja moves aside, I am honored to feature a local Houston blog, “Neurofibromatosis Café” as the boss blog of the month.

So what you’re saying is there’s a new place in town for coffee and tweet-ups? Coffeegroundz what? Unfortunately no… but there is a man named Reggie Bibbs.  Reggie was born with neurofibromatosis (NF) which is a genetic disease that causes him to develop tumors on his body. He began this blog, along with long-time friend Lou Congelio, president of STANANDLOU Advertising, to spread the word of NF.

I recently had the opportunity to speak with Reggie and it became one of those moments where you think to yourself…so this is what life is all about. His passion and spirit were infectious as he spoke about what his blog has provided for people.

“I believe my blog has helped others to realize that things aren’t as bad as they seem. If I am out and happy with my problems, then others should be to. It is an encouragement to people with NF and without NF.”

So how did Reggie’s blog become what it is today? Reggie explained to me that it was after his brother, Ronald, lost his life to NF that he was not going to let anyone else go through what his family had to endure. Teaming up with Lou, they created the Just Ask T-shirts…

“I had the shirts made so people would ASK when they saw me. People wanted to know, but I felt like they didn’t know how to ask. After the shirts, Lou suggested a blog to write about my experiences.”

And as they say…the rest is history.

The Just Ask campaign went on to win 2 gold ADDY awards, one silver, and a Special Judges Award for Public Service Advertising. I would never claim to be an advertising genius, or a pro unicorn jouster for that matter, but I do know that the Just Ask ads were absolutely spectacular and the well earned recognition could not have happened to a better guy…that’s you chief.

Reggie is also lucky enough to have Lou, along with two other of his close friends, William and Matt contribute to the blog. These guys have not only helped document Reggie’s experiences but they have played a huge part in bringing NF to the forefront.

“These guys mean the world to me. Without them, I would not be able to do what I do. They are the friends that encourage me to get out there and do things. When Lou talked me into going to the Astros game, it was something I will never forget. It was a full house…everyone was so nice to me and because I took that step, I felt like I could go other places.”

No doubt about it, Reggie has definitely become the man about town. Through his blog posts, you can see what an impact Reggie is making in the community. He has spoken across the country for other NF Foundations where his most recent trip was to Grand Rapids…next stop…Canada. Here’s a fun fact: I am a ninja and can fit in medium-sized suitcases; specifically designed to fly to Canada…I’m just sayin’.

When he is not traveling, you can see him at the Houston Roller Derby, meeting with political figures, chummin’ it up with Kevin Nealon, starting the dance revolution at Music Nites…really, the list goes on and to be quite honest, I’m not yearning for carpal tunnel anytime soon so I will bid adieu. But before I… “do,” I want to leave you with one final thought from a man who used something as simple as a blog to create a movement and therefore inspire others to simply be thankful.

“People who have NF come to my blog to read my stories and learn that even if you have NF, you can still live a full life. They see that I have learned that most people will understand…the ones that don’t, that’s ok. Think about the people that have accepted you.” –Reggie Bibbs

Other Ways to Connect with Boss-Blogger Reggie Bibbs:

Reggie Bibbs-Neurofibromatosis Flickr stream

Visit Reggie Bibbs on Facebook

*The photo was apart of the award-winning ads recognized at the 2009 ADDY Awards.

Thanks again Reggie! You truly are an inspiration.

14 Replies to “Boss Blog of the Month: Neurofibromatosis Cafe”

  1. Reggie is such an inspiration – I love keeping up with his adventures on his Blog 🙂 Thanks for doing what you do Rock Star Reggie!!!!!!!!!!!!!!

  2. Well, just call me misty eyes now. I love your blog post. Thank you for wanting to blog about me. This is great, now more will learn about, by not just my blog, but by reading your blog. Like I have said many times. Make it a tremendous day!
    Reggie Bibbs

  3. Hey, it's summer and I'm going into eighth grade this year! I'm at an academic summer camp learning about cell biology, and our final project is a presentation about a genetic disease. When my partner suggested neurofibromatosis and I googled it, I saw Reggie's blog. It's given me good material AND inspiration. I'll remember the picture on your blog next time I get a break out, Reggie!

  4. Wow, thanks for giving Reggie another piece of the recognition he so richly deserves. There are far too few people in this world like Reggie.

    1. Thank you Matt…we were honored to share Reggie's story. Reggie, Lou and yourself have created something much bigger than just a blog and that is rare to come across these days. He is such an inspiration not only here at the Schipul office but to the entire Houston community. We love Reggie! You guys are welcome at Schipul offices anytime!

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